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I am 22 years old and have Ehlers-Danlos Syndrome. I have a 4 month old baby after 5 miscarriages. I spent 4 months on complete bedrest and took Heparin for 8 months and Prednisone and progesterone for 4 months and now as a result have severe osteoporosis. My spine is a -3.5 and hips -2.4. My doctor had recommended Forteo but i decided against it because of the newness of the drug and possible bone cancer. I feel i'm too young to take that risk so we decided on Actanal. What do you think would be the best choice for me considering my scores and age?
Also, my doctors have told me not to have any more children but i can't help thinking that if i reverse the osteoporosis just maybe... I'm also wanting to start pool thearpy but live in a very rural area without many resources. i am currently taking 3 viactives a day and using a treadmill. what do you think about coral calcium,opc-3, and collagen supplements? i have heard good things about them but am not sure. I have an unknown type of EDS. I also have severe Deltoid Tendonitis where my arm is numb in that area along with Arthritis. I'm on Bextra and lots of pain meds. Any information would be great. Thanks.
Question by Lesley from Salem, Mo |
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It is common for a post delivery woman to have increased calcium levels for approximately 6 months post delivery. It would be prudent for you to follow your physicians recommendations regarding medications at a minimum until then and then possibly have another Dexa scan to determine a long plan.
Answered by Dr. Richman on 03/04/2003 |
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